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Getting Organized

Having a child with a hearing loss creates a lot of paperwork, having a child who is deaf+ creates even more!! Though tough to get all the paperwork organized it really will make your life so much easier, will give you a good overall picture of your child and help you see any gaps.

So how do you start?!!

1. Make a master contact list:  this should include

Provider/Title
Address
Phone/fax
Email
Services/Treatment
Medical:
Pediatricain
Audiologist
ENT
Other
Educational
EI Provider
Teacher of the Deaf
Itinerant Teacher
ESD
Others…

2. Request Your Child’s Record

It’s good to have the same copies of reports, evaluations, and comments as your provider.

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A Mother’s To-Do List – by Janet DesGeorges

1. Start Dinner

2. Change the World

     3. Do the Laundry

Do you have time for “advocacy” in your schedule? When my child with special needs was born, the journey our family embarked on was a very personal one at first. The identification of hearing loss in our daughter thrust us into a system which we were forced to navigate with no previous life experience.

We needed to make choices for our daughters’ therapies, education, funding issues, and medical interventions. We needed to learn how to differentiate between professional opinion and facts. We were only concerned with the specific choices we as parents needed to make for OUR daughter, and were not even thinking about the “system” which was in place in our community and state, except how it related to the services our family needed.

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Start The Music – Mindy Allen

When my daughter was first diagnosed, I cried over what I thought was the loss of song.  I remember I had learned the Season’s version of the Rock a Bye Baby song and I thought I could not sing to her anymore.

Both as a parent and as an early interventionist, I now realize how important singing songs and repeating nursery rhymes with children with a hearing loss can be to language development. You can sing and rhyme with your child just the same as you would with a normally hearing child. Through my schooling to become an early interventionist and to work with children who are deaf or hard of hearing, as well as using the Ski HI Curriculum, I have come to the understanding that singing and rhyming are vital in many ways.

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One Family’s Journey

 By Una Carroll, Arkansas Hands & Voices

Mick Jagger sang, “You can’t always get what you want/ But if you try sometimes well you just might find/ You get what you need.” This is precisely what our family discovered when our son Conor began attending our neighborhood school. Conor has always had the best audiologists, the best therapists, the best educators, and the best advisors training me. We feared he may not get the best there. However, we found that looks can be deceiving.

Conor’s professionals empowered me to become the advocate that I am today. It was impressed upon me from the beginning that my husband and I would forever be our son’s strongest advocates.

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Choosing Your Mode of Communcation

One of the first challenges that parents have to face when they learn that their child is deaf or hard of hearing is: how is our family going to communicate effectively? Will my child talk? Will I hear her say “I love you?” should she talk? That task can seem overwhelming. Despite all the valuable advice that professionals can offer, that final decision about communication options is the family’s decision. In choosing what is best for their child, consider what appears to make the most sense based on the child’s amount and quality of residual hearing and what works well for the family.

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